Wednesday, April 15, 2009

Let's Make Cancer Research Happen

By Margaret Anderson, COO, FasterCures
I was going through some clips this week and the Houston Chronicle Op-Ed caught my eye Now's time to reinvigorate country's War on Cancer. U.S. Senators Kennedy and Hutchison outlines in the piece what their bipartisan legislation proposes to do to get things moving. Of the many important proposals detailed in the legislation, the third solution the senators present focuses on a more coordinated approach to cancer research. There was also mention of how "Integrated research will help accelerate the progress of lifesaving research. The search for cures should be a collaborative goal." Indeed!

I was particularly pleased when the senators highlighted the need to establishing an interconnected network of biorepositories with broadly accessible sources of tissue collection and storage. Biospecimens are often cited by the research community as the most critical of all issues. Unfortunately, experts contend that "of the 350 million specimens collected in the United States, only 30 percent of them - some say the number is even lower - are of a quality standard high enough for research purposes." That's why we developed and facilitate BioBank Central. We want to link researchers with resources, encourage the donation of specimens, and educate the public about scientific advancements. I am hopeful that this bipartisan legislation will be instrumental in breaking down this obstacle to research progress.

The senators went on to state in this piece that "our national policy should encourage all stakeholders in the War on Cancer to become allies and work in concert toward cures." It's certainly not that scientists and doctors don't want to be allies, if they could have done anything to save the lives of the half a million Americans who died of cancer in 2008, they surely would have. But there is work to be done to create the necessary networks, and then to maximize their potential.

My father, Don Anderson, was one of the thousands who died prematurely of cancer in 2005, and the research team that led his leukemia clinical trial at Johns Hopkins University did everything they could to find treatments to extend and maybe even save his life. On the day that someone you love dies of cancer, you cannot help but think about all of the other families that are going through that experience at the same time. It is not a comforting thought. The barriers that stood in the way of progress in the research he participated in went well beyond the scientific questions the team faced about how to shut down the mechanism of his cancer, and surely included the barriers this legislation aims to address.

Let's be sure to have a robust discussion about these barriers and potential solutions in the context of the Kennedy-Hutchison cancer bill. There will be an anticipated 1.4 million Americans diagnosed with cancer this year that will get added to the group of people whose lives have been changed forever by cancer. They and their families and friends are all anxious for rapid progress in cancer research and care. Let's make it happen.

5 comments:

jimmy_B said...

If only the Doctors, the Universities, the Drug Companies, the Insurance companies and the Government would work together instead of pickering who is going to get which piece of the pie. It is time put down our differeces and work together for a Cure.

"If we work together, we can move Mountains!!!!!"

Jim Breitfeller

(Patient/Survivor/Researcher/Advocate)

Melanoma Missionary

jimmy_B said...

Had a typo Please post this one Thanks

If only the Doctors, the Universities, the Drug Companies, the Insurance companies and the Government would work together instead of bickering who is going to get which piece of the pie. It is time put down our differeces and work together for a Cure.

"If We Work together, We can Move Mountains!!!!!"

Anonymous said...

I could not agree more. I am a childhood cancer survivor (22 years now) and am amazed at the advancements in pediatric oncology research, advancements made with little funds and lots of collaboration. The Children's Oncology Group, which treats 90% of children with cancer, is unique in that it takes a collaborative approach to research and care of patients. Collaborative research and clinical trials are the key to a cure, and a much cheaper and quicker cure. I wish the rest of the medical establishment could follow the lead of the selfless and wonderful doctors, nurses and researchers working in pediatric oncology.

Anonymous said...

I could not agree more. I am a childhood cancer survivor (22 years now) and am amazed at the advancements in pediatric oncology research, advancements made with little funds and lots of collaboration. The Children's Oncology Group, which treats 90% of children with cancer, is unique in that it takes a collaborative approach to research and care of patients. Collaborative research and clinical trials are the key to a cure, and a much cheaper and quicker cure. I wish the rest of the medical establishment could follow the lead of the selfless and wonderful doctors, nurses and researchers working in pediatric oncology.

pfj said...

Cancer research? They are not asking the right questions; therefore cannot get the right answers.

What causes cancer? (Not 'what things, substances, toxins' cause cancer.) Why does it happen? That's the question to answer.

Once the process has started, in however modest a fashion -- yes, 'they' know what it does, where it goes, and so on. It's that beginning which is the key.