FasterCures Congratulates Marilyn Tavenner’s Confirmation as Medicare/Medicaid Chief

by Margaret Anderson, Executive Director, FasterCures

Photo courtesy of Yahoo News

FasterCures congratulates Marilyn Tavenner for her confirmation as administrator of the Centers for Medicare and Medicaid Services (CMS), an $820 billion agency that oversees the bulk of federal healthcare spending and healthcare reform.

Tavenner is the first confirmed administrator for the agency in more than six years, backed by an overwhelming 91-7 vote in the Senate. Such demonstration of bipartisan support underscores the importance of having strong and sustained leadership of an agency that plays a vital role in determining the fate of the U.S. healthcare infrastructure.

CMS oversees Medicare, Medicaid, children’s health insurance, and implementation of many of the provisions of the Affordable Care Act. Decisions made by CMS impact not only the way we reimburse for costs associated with healthcare delivery, in so many ways, these decisions also determine what therapies patients can access today, and what therapies might move down the path from the laboratory bench to the patient’s bedside.

And that’s why at FasterCures, we’re particularly paying close attention to the role CMS and other payers could and should play in advancing innovation in research and development. We continue to work closely with all sectors of the medical research ecosystem to explore effective ways to engage payers into the R&D process whether it is through a discussion of what data sets are relevant to reimbursement decisions, or a broader conversation about the role that reimbursement will play on decisionmaking at biopharm companies as they decide therapeutic discovery pathways.

Tavenner has a long to-do list ahead and we commend her commitment to strengthening the agency to improve health outcomes for patients, make our health care delivery system more effective and efficient, and ensure the best possible therapies can be made available to the right patients at the exact time they need it.

We stand at the ready, Administrator Tavenner, to support you and CMS.

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One woman’s fight to find cures for neuroendocrine cancer

Time=Lives Story of the Week: Catherine Cooling Davis

Catherine Cooling Davis is 28, newly married, getting her MBA, and living with metastatic neuroendocrine cancer. But, she’s not letting this life-threatening diagnosis stop her from being her own best advocate in the face of uncertainty.

Neuroendocrine tumors (NET), most recently in the news as the type of cancer that killed Steve Jobs, is slow-growing and can begin anywhere in the body that has neuroendocrine cells. Although these cells exist throughout the body, NET are most commonly found in the gastrointestinal tract and lungs. More than 11,000 people are diagnosed with NET each year – a number that is growing by five percent annually.

Medical research is important when it comes to NET because most patients are only diagnosed in the late stages of the cancer once it has metastasized. In Catherine’s case, her diagnosis didn’t come until her cancer was in stage four, forever changing her busy life. However, faced with endless appointments with a series of doctors, Catherine knew she had to take her treatment into her own hands. “Since my diagnosis, I have traveled to meet specialists all over the country,” she said. “They have no better idea what to do with me than I know what to do with myself. Each of the specialists has a strategy, none are the same, and all say that the other doctors' strategies are also not wrong.”

"As terrifying as it is," she says, "I have to be my own best advocate. I have to choose the medical plan that I feel is best for me."

Catherine chose to have surgery to begin removing multiple tumors from her liver. In addition to this, she is searching for answers to many of her unaddressed questions. “I don't know how long I can live with this disease. I don't know how fast it is growing, how long I have had it, or how long I will continue to feel as good as I do,” said Catherine. But, she has hope. She believes a potential cure for this deadly cancer has been developed but sits idle in a research lab at Uppsala University because it cannot currently be patented by the company that owns it. So, Catherine and her friends and family began fundraising to provide money and support for the researchers to take the drug into phase 1 clinical trials.

To read more about Catherine’s story, visit Let’s Cure Neuroendocrine Cancer, or visit Catherine’s Time=Lives story page. 

Using electricity to get the blood pumping

Time=Lives Story of the Week - Fred Streitz

As director of the Institute for Scientific Computing Research at Lawrence Livermore National Laboratory, and director of the High Performance Computing Innovation Center, the technology Fred Streitz is working on everyday has the potential to save lives. Through the use of high performance computers, Fred and his team have developed a new code called Cardioid, which mimics the electrical currents that naturally make the muscles of the heart pump blood throughout the body.

Watch Fred's Time=Lives story here.

We met up with Fred at last fall’s Partnering for Cures when he presented Lawrence Livermore’s collaboration with IBM Research and learned more about its opportunities for biotech and pharmaceutical companies that offer on-demand access to computation expertise running on high-performance computers.

Researchers at the Lawrence Livermore National Laboratory took on this project to saves the lives of those with heart arrhythmias and other heart complications. When the natural electrical system within the heart malfunctions, it can cause an arrhythmia where blood flows irregularly to the body. As a result, more than 325,000 people die each year in the U.S. from this condition.

Fred, who earned a Ph.D. in Physics from the Johns Hopkins University and a B.S. in Physics from Harvey Mudd College, is a leader in High performance computing at Lawrence Livermore National Laboratory, which specializes in combining advanced science with biomedical research in an effort to strengthen national security and contribute to the major medical issues facing the US. “People’s lives are at stake,” said Fred. “Every time a cure doesn’t work, or a cure gets delayed for lack of funding, experience, or scientific background, those are lives that are at stake.”

Fred’s work at Lawrence Livermore is a great example of the power of technology and innovation to change the healthcare and medical research industries. Just last week, President Obama announced his support for BRAIN (Brain Research through Advancing Innovative Neurotechnologies) a radical national initiative which allows us to "better understand how we think and how we learn and how we remember," said the president. Additionally, the promise of whole genome sequencing is also leading to rapid new discoveries enabled by a decrease in cost and increase in availability.

Check out more stories from researchers like Fred on Time=Lives.