Friday, March 13, 2009

Is the HIPAA Privacy Rule Impeding Research?

FasterCures invites you to a special briefing and discussion
Wednesday, March 25, 1:30 pm – 3:00 pm

  • Marc Boutin, Executive Vice President & Chief Operating Officer, National Health Council; Institute of Medicine (IOM) Committee Member
  • Sharyl Nass, Study Director and Senior Program Officer, IOM
  • Greg Simon, President, FasterCures
Biomedical researchers use health information from multiple sources including patient registries, medical records, biobanks, and government-supported databases of statistics. Ten years ago, Congress called for a set of standards known as the HIPAA Privacy Rule to protect the privacy of patient medical records held by covered entities, which are often used in such research.

But has the HIPAA Rule compromised both patient privacy and medical discovery? A recently released IOM report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, examines HIPAA one decade later, and finds that these federal standards may be due for an overhaul, to serve the interests of progress as well as patients. Come join us to hear about the report's findings, and to discuss what happens next.

Please join FasterCures for this timely discussion on: Wednesday, March 25, 2009
1:30 pm – 3:00 pm
1101 New York Avenue, NW, Suite 620 Washington, DC 20005
Space is limited, please RSVP to Patricia Wolf at or 202-336-8917, by COB Monday, March 23, 2009.

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